Me, A Mom

3 kids and a dog

Archive for the tag “learning”

Fears of daily living

Look,

it’s a fact

life is full of things that can

and

do happen

you know:

“Why do bad things happen to good people”

no…autism/aspergers is not bad but it is  a huge change

a change in how you think about actions and reactions

an everyday, uphill battle at times not just for the one diagnosed but for the whole family

I digress….

When bad things happen to good people

 you buck up

you learn to deal

Image result for learn to deal with aspergers

and you go on with the daily task at hand

…living…

but once that diagnosis comes through the door

on top of multiple other medical problems and issues for that child.

and you need to start researching

and then doing

and following through

and constant checking and rechecking

there is an unending indescribable level of anxiety

am I doing enough

am I teaching enough

Image result for constant anxiety

will my actions lead to my child being able to live on his own???

only time will tell.

until then…

Image result for carry on quotes

carry on.

Sink or Swim, you’re on your own

This post is venting my frustration with the system

The system we call “school”

My teen, recently diagnosed with High Functioning Autism/Aspergers

is in that “system”

except I don’t think he’ll qualify for special ed so then we will need to set up a 504 which I think he does need and should qualify for….

but this is taking so much time

this is the point I’ve been at since diagnosis….which was 3 months post requesting an evaluation by the school and we are still sitting two (nearly 5 months total since first request for evaluation)months later with nothing in stone

yes

I could go to the DPI

Image result for dpi grievance

but that isn’t going to get things moving faster for this year

so

I take into my own hands

as most parents probably do or should do

and I research…

what can I do to improve his fine motor skills at home

like ideas from this site

and from searching on pinterest

borrow/rent/buy every book on High functioning autism I can find

then

move on and realize a couple books by Temple Grandin is enough for now.

and move on to reading up on IEP’s and 504’s

in an attempt to maintain sanity and know as much possible before the meeting occurs

It seems in this current culture

if a child is getting halfway decent grades and is not a problem in class

they are are not a concern for the school

the focus is on disruptive kids

and while they do need help

so do the high functioning kids

I don’t know the solution

or

how to change the system

but I do know

I’m going to teach my child how to “swim” in this world

High Functioning Mild Autism/Aspergers

Yes that’s the very recent diagnosis of my 15 year old

something I’ve suspected for oh say 13 years!

because he followed the rules at school and got decent grades

but  was a beast at home fairly often, was not a concern of school personal

and by the way:

we’ve referred to him as Sheldon from big bang ever since the show came out!

but I’m getting off track…

in almost every book I’ve been skimming on autism,  that(different school/home behavior) is one of the most common things there is in autistics

they call it the Jekyll and Hyde symptom

you see they expend so much energy at school trying to appear normal, to perhaps not do their repetitious behavior or not speak out of turn by the time they get home they are mentally exhausted and cannot handle even the slightest stress, and they explode/tantrum/yell etc…

So what to do now??

for the last 12-13 years I have been his main source of therapy, talking about situations, and what set off the tantrum, and what he can do different next time but he is starting to need more than I can offer.

We are still waiting on the official report

so we can present it to the school, complete with suggestions for an IEP or 504 type plan.

which we’ll end up with … no idea…more later

I’ve just started wading through the books out there and one they all have one thing in common

way too much information.

OK  actually just enough information

but the way some of the books present it is overwhelming to wade through

that said I have started compiling information and making small decisions of “therapy” I can start to  add at home

like:

  • exercises in making eye contact
  • story sharing,  what would you do if…etc…
  • more dialogue practicing
  • more review of how day went(we already do quite a bit of this…now it will be in a different way)
  • and that’s enough of a start for now.

 

look for reviews of books I find most helpful to follow in the future.

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