Me, A Mom

3 kids and a dog

Archive for the tag “high functioning mild autism/aspergers”

Pacing

My Child with High Functioning Autism/Aspergers

PACES

AROUND OUR TABLE

FOR HOURS

the older he gets

the bigger his feet get

it is loud

it is constant

he walks so fast I have to put on a sweater if I’m typing at the computer

and

this morning

1 am this morning

I wake up to hear him pacing around a card table in his room

full of energy

looking like he is no where near ready for bed

(doesn’t help that the teenager doesn’t wake up till noon)

so I’m left with a dilemma

his pacing does not hurt himself or anyone else

until it’s waking me up at night

it does drive me craze sometimes

he says it helps him think

plan his next coding or composing project(of which he does a lot and he is very good)

however….

sometimes

I just can’t stand it for another minute

I don’t understand what it does for him

and

quite frankly after conversations, short of saying it helps him think…neither does he.

he is just driven to walk, to pace, sometimes we have fun with it

I’ll sit a the piano and play something to the beat he is walking then he’ll stop suddenly and usually I catch him and stop playing

sometimes I’ll follow him around the table.

then he smiles even though it annoys him

that is all

thank you for letting me vent.

Advertisements

Sink or Swim, you’re on your own

This post is venting my frustration with the system

The system we call “school”

My teen, recently diagnosed with High Functioning Autism/Aspergers

is in that “system”

except I don’t think he’ll qualify for special ed so then we will need to set up a 504 which I think he does need and should qualify for….

but this is taking so much time

this is the point I’ve been at since diagnosis….which was 3 months post requesting an evaluation by the school and we are still sitting two (nearly 5 months total since first request for evaluation)months later with nothing in stone

yes

I could go to the DPI

Image result for dpi grievance

but that isn’t going to get things moving faster for this year

so

I take into my own hands

as most parents probably do or should do

and I research…

what can I do to improve his fine motor skills at home

like ideas from this site

and from searching on pinterest

borrow/rent/buy every book on High functioning autism I can find

then

move on and realize a couple books by Temple Grandin is enough for now.

and move on to reading up on IEP’s and 504’s

in an attempt to maintain sanity and know as much possible before the meeting occurs

It seems in this current culture

if a child is getting halfway decent grades and is not a problem in class

they are are not a concern for the school

the focus is on disruptive kids

and while they do need help

so do the high functioning kids

I don’t know the solution

or

how to change the system

but I do know

I’m going to teach my child how to “swim” in this world

High Functioning Mild Autism/Aspergers

Yes that’s the very recent diagnosis of my 15 year old

something I’ve suspected for oh say 13 years!

because he followed the rules at school and got decent grades

but  was a beast at home fairly often, was not a concern of school personal

and by the way:

we’ve referred to him as Sheldon from big bang ever since the show came out!

but I’m getting off track…

in almost every book I’ve been skimming on autism,  that(different school/home behavior) is one of the most common things there is in autistics

they call it the Jekyll and Hyde symptom

you see they expend so much energy at school trying to appear normal, to perhaps not do their repetitious behavior or not speak out of turn by the time they get home they are mentally exhausted and cannot handle even the slightest stress, and they explode/tantrum/yell etc…

So what to do now??

for the last 12-13 years I have been his main source of therapy, talking about situations, and what set off the tantrum, and what he can do different next time but he is starting to need more than I can offer.

We are still waiting on the official report

so we can present it to the school, complete with suggestions for an IEP or 504 type plan.

which we’ll end up with … no idea…more later

I’ve just started wading through the books out there and one they all have one thing in common

way too much information.

OK  actually just enough information

but the way some of the books present it is overwhelming to wade through

that said I have started compiling information and making small decisions of “therapy” I can start to  add at home

like:

  • exercises in making eye contact
  • story sharing,  what would you do if…etc…
  • more dialogue practicing
  • more review of how day went(we already do quite a bit of this…now it will be in a different way)
  • and that’s enough of a start for now.

 

look for reviews of books I find most helpful to follow in the future.

Post Navigation