Me, A Mom

3 kids and a dog

Archive for the category “eoe”

Yes …..even this busy mom finds time to read

I recently read ( and reviewed) a book titled “Jewel” by Bret Lott.

and if you are at all into reading (it’s an Oprah’s book club book) I highly recommend you pick it up at your local book store or library.

If you are now or have ever dealt with an ill child that required all your time and devotion  whether that illness was acute or chronic  this book will fill your heart with all the words and emotions you think but have never quite been able to put words to.

read my review here

 

This book especially spoke volumes to me as I have 3 children,

2 of them have food allergies one to dairy, eggs, tree-nuts, and peanuts(and one just eggs, tree-nuts and peanuts)

the one with slightly fewer allergies also fights asthma and eosinophilic esophagitus.

its been a long 11 years some times

and I wouldn’t trade any of them

 

but again

 

this book gets to the heart of a mom

the sacrifices she makes in regards to her marriage, and her other children

all to help the one child get the best help possible

 

If you are a parent/mom/grandparent   or even just human

you will find yourself feeling what Jewel is feeling…..

empathizing with her

despising her

loving her

and in the end

respecting her.

 

do yourself a favor….read the book!

 

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when making plans….expect the unexpected

My oldest child has EOE Eosinophilic E)sophagitus

(found this image online: my sons eoe looked like the middle image)

this means that without his medication, a flovent inhaler that is swallowed…and supplement drinks….he is underweight…

thats the short story

the second is that there is a bug going around

and we are do for a follow up

so of course…hubby gets sick

then the eoe kid gets it….which has flared his asthma

so now we need to call the children’s hosp

to find out if he can keep his apt that took 4-6 months to get and that’s after the doctor had to have us reschedule the original apt as she was going to be out of town for the first one….mind you these are follow ups for weight/height

so here we sit….plans in force down the drain….becoming a status quo

ok enough complaining/venting

in general his health has improved greatly over the last 2 years and he is taller than me!

but I’m mom…and I worry

that I am doing all I can

and sometimes

when they get sick its scary

but

through prayer and persistence

we make it through

and everything is going to be ok

just not according to MY plans….

Tandoori Chicken….allergen friendly

A while back I saw this in the grocery store, and as I was often curious about the flavor I bought it.

and we tried the recipe on the tin.   YUM!  a bit spicy but also a depth that cannot adequately be put into words.

The recipe on the box is good

I use  about half the powder the recipe calls for

To make it allergen friendly I use soy sour cream instead of dairy yogurt(If I was able to get plain non dairy yogurt I would use that)

and instead of melted butter I use olive oil

it also calls for lemon juice

The recipe from the box:

1 pound chicken(make slices across the top of the pieces)

2 tbsp tandoori powder

2 tbsp plain yogurt

 1 tsp lemon juice

1 tbsp oil

salt and pepper to taste

mix  the last 5 together and pour over chicken(I do this in a plastic freezer bag)

let marinate a few hours

grill or broil till done!

(not my image  below but that’s about how it looks when done!)

Tandoori Chicken - Grill method (optional dairy free)

YUM

Mexican Bean Dip Pie

Mexican Bean Dip Pie

So simple

So yummy

(although the one who is allergic to dairy can’t eat it…but he says he’s glad cause he thinks it looks gross )

@-@  thats me rolling my eyes!

layer in a pie dish

1 can fat free refried beans(we use old el paso)

1 cup guacamole(use your favorite brand)

1 cup salsa(I used Newmans Ownmild, but if you’re into spicy feel free to substitute)

1 cup shredded cheddar

1 4 oz can sliced olives

and if you have it

put sour cream in a baggie

snip off the corner and drizzle it over the whole thing(I forgot to buy it today but I guarantee its good!)

then

open up your favorite bag of tortilla chips or if you have time (yeah right)

make your own.

and

ENJOY!

 

What’s 100# 5′ 4″ eats all day and never gains weight?

a teenage boy that’s what!

ok so it doesn’t help that he has eosinophillic esophagitis (EoE)

which is a condition in which white blood cells collect in the esophagus(where they should not be)

EOE causes him to not absorb nutrients properly

so after 3 years of puking every other day and then sleeping all day

after being misdiagnosed with

anxiety

stress

abdominal migraines

he finally got a diagnosis and has started putting on weight

{note to all parents advocate for your kids trust your gut and push further if something just doesn’t seem right!}

yay

but …

he is always hungry!

a bottomless pit!

I think the grocery bills have doubled since he became a teen

he eats literally all day

he eats supper and

no less than an hour or so later he is making himself a Dagwood style sandwich!

ok perhaps that is exaggerating just a bit

his is just 3 slices of bread with 4-6 slices of cheese usually!

then a handful of meat

or some crackers

Meals that used to last us 3 days now get us barely through 1

so last night I made a 5 pound boneless pork butt

from a recipe from the paper

I served it with homemade coleslaw

on rolls

with side of mashed potatoes

and guess what

they loved it! and there is enough left for at least 2 more meals

whoot whoot!

tonight will be meatloaf

and then the rest of the week should work out to be left overs!(their choice of course)

until my next post

happy eating

happy living

Food allergies (no its not that they just don’t like the food!)

food allergies and food intolerance’s are two different beasts

and intolerance may make you miserable

while

food allergy can kill you

————————————————————

It started simply enough….

decide to have a baby

get lucky enough to get pregnant

then

you  notice blood in their diaper

then head to toe itchy rashes that local doctors are not able to control

the baby rubs his heals so much on the sheets the sheets have streaks of blood on them in the morning

their scalp is covered with dermatitis and that too is itched bloody while they sleep.

you try to nurse, adjust your diet stop eating dairy, eggs, and nuts, but the blood in the diapers continues

so its off to a childrens hospital where your child is finally diagnosed with allerigies

not one but 3 Dairy, Eggs, and nuts(all nuts, peanuts and tree nuts)

it is daunting learning to read labels

it is daunting changing how you cook

my middle child as an infant could only tolerate neocate

at close to 35 dollars a canister that would get us through just over two days it was all he ate.

we did try other foods, sweet potatoes worked, many others he had skin reactions to so we were only doing a tsp. or so of new food a week

and finally after appeals, and letters from doctors insurance covered some of what they were trying to not cover

they said it was a supplement(not when its all they eat we said!)

not long after my middle child was diagnosed his older brother had a reaction while eating a cookie and was subsequently diagnosed with food allergies as well, eggs and all nuts(and several years ago was diagnosed with esosinophilic esophagitus…but thats for another post)

the website that we have found the most helpful

is FAAN, the food allergy and anaphylaxis network

the best thing about it is you can get either download or order

sheets that clearly state the foods to look for when reading a label  for various food allergens

although reading labels has become easier over the years…they are now heading into middle and high school(and the worries change)

companies sometimes change formulas so its best to scan through the ingredient labels every time you purchase a product

and from the time your child can read teach them (not in a fearful way) but teach them to read labels have some foods that are not safe and teach them what to look for.

When you can, when necessary …educate others about the food allergies

food allergies and food intolerance’s are two different beasts

and intolerance may make you miserable

while

food allergy can kill you

more another day on the experiments I’ve done, the food substitutes we love and some that failed. as well as sources for recipes we like, and products we enjoy.

thankfully the kids can still have gluten/wheat cause thats a whole nother beast.

 

the thing is it becomes part of your life, much like how a diabetic watches their blood sugar

yes the first years were stressful but you buck up and deal

and you find ways to make your kids own their allergies and realize life goes on and not to dwell (more on how to keep sane later) 🙂

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