when making plans….expect the unexpected
My oldest child has EOE Eosinophilic E)sophagitus
(found this image online: my sons eoe looked like the middle image)
this means that without his medication, a flovent inhaler that is swallowed…and supplement drinks….he is underweight…
thats the short story
the second is that there is a bug going around
and we are do for a follow up
so of course…hubby gets sick
then the eoe kid gets it….which has flared his asthma
so now we need to call the children’s hosp
to find out if he can keep his apt that took 4-6 months to get and that’s after the doctor had to have us reschedule the original apt as she was going to be out of town for the first one….mind you these are follow ups for weight/height
so here we sit….plans in force down the drain….becoming a status quo
ok enough complaining/venting
in general his health has improved greatly over the last 2 years and he is taller than me!
but I’m mom…and I worry
that I am doing all I can
and sometimes
when they get sick its scary
but
through prayer and persistence
we make it through
and everything is going to be ok
just not according to MY plans….
